Emphasizing the life-threatening impact of skin cancer and the importance of protection, early detection, and treatment.






The theme for IAAD 2025 is: “Demanding our rights: Protect our skin, Preserve our lives”.

This theme highlights the urgent need for awareness, prevention, and access to essential healthcare for persons with albinism, emphasizing the life-threatening impact of skin cancer and the importance of protection, early detection, and treatment. It also ties well with ongoing advocacy around the addition of sunscreen to the WHO EML.

The theme calls on authorities to:
  • Recognize that the failure to prevent skin cancer related deaths – which are foreseeable, yet preventable – in persons with albinism constitutes not only a violation of the right to health, but also the right to life
  • Take steps to prevent skin cancer related deaths in persons with albinism, including through skin cancer screening and provision of sunscreen
  • Add sunscreen to the WHO Essential Medicines List and national essential drug list
  • Ensure data on skin cancer prevalence is disaggregated to reflect the number of persons with albinism affected by skin cancer

Albinism groups are invited to:
  • Reflect and share information on cases of skin cancer in their country
  • Celebrate and share advances in skin cancer prevention and treatment
  • Highlight further action required


This IAAD, Join us for NOAH Night!

We are so excited to share that NOAH Night is back this year…with a twist! We can’t wait to bring together the community on Gatherly for this fun, virtual event, and the chance to make meaningful connections with PWAs and community members from across the country and beyond.

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