Portland, OR Meet-up! on Friday, June 13th from 3:30 to 6:30pm at the location 8524 SE 17th Ave Portland OR 97202. Slow Pour Coffee + Bar; We’ll discuss forming an albinism group in the Portland area & tune in to NOAH Night on Gatherly. Fun, fellowship, and food available for purchase! Donations appreciated to support NOAH : Contact: longs-barons.0q@icloud.com
The Independent Expert on the enjoyment of human rights by persons with albinism, Muluka-Anne Miti-Drummond, called on States to take robust measures to address persistent human rights challenges faced by persons with albinism, including in the areas of education, health care and employment, where systemic barriers continue to impede the enjoyment of these rights. “Over the past decade, my predecessor and I have engaged, advocated and reported on a wide range of issues related to albinism,” said Miti-Drummond as she presented a report marking the tenth anniversary of the mandate on albinism at the 58th session of the Human Rights Council. “With the support of Member States and civil society actors, the mandate has played a central role in mainstreaming the rights of persons with albinism and in contributing to the increased recognition of their rights at the global, regional and national levels,” she said. The expert noted that significant progress had been made in advancing the huma...
The theme for IAAD 2025 is: “Demanding our rights: Protect our skin, Preserve our lives”. This theme highlights the urgent need for awareness, prevention, and access to essential healthcare for persons with albinism , emphasizing the life-threatening impact of skin cancer and the importance of protection, early detection, and treatment. It also ties well with ongoing advocacy around the addition of sunscreen to the WHO EML. The theme calls on authorities to: Recognize that the failure to prevent skin cancer related deaths – which are foreseeable, yet preventable – in persons with albinism constitutes not only a violation of the right to health, but also the right to life Take steps to prevent skin cancer related deaths in persons with albinism , including through skin cancer screening and provision of sunscreen Add sunscreen to the WHO Essential Medicines List and national essential drug list Ensure data on skin cancer prevalence is disaggregated to reflect the number of persons with...
Comments
Post a Comment